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The medical model of autism encourages continual research into the causes of autism, with the primary goal of finding a way to prevent or cure autism. This is a subset of the medical model of disability in general. The model advocates a variety of goals including increased awareness of autism prevalence, earlier and more accessible diagnosis, elimination of autistic behaviors through therapies such as applied behavior analysis, identification of environmental factors that may cause autism in infancy, and identification of a genetic marker to allow testing for autism in utero. Advocates for the medical model believe that autism is a disorder caused by genetic defects or environmental harm, that the value of talents attributed to autism does not outweigh the deficits, and that most autistic people would be better off if they were not autistic. For instance, then-president Liz Feld of Autism Speaks stated that one-third of people with autism also have a seizure disorder, half suffer serious digestive complications, 49 percent wander, and more than 30 percent are nonverbal. Many organizations subscribe to the medical model, most of which have non-profit status. The autism rights and neurodiversity movements are critics of the medical view.
Autism is defined in the DSM-IV-TR as exhibiting at least six symptoms total, including at least two symptoms of qualitative impairment in social interaction, at least one symptom of qualitative impairment in communication, and at least one symptom of restricted and repetitive behavior. Sample symptoms include lack of social or emotional reciprocity, stereotyped and repetitive use of language or idiosyncratic language, and persistent preoccupation with parts of objects. Onset must be prior to age three years, with delays or abnormal functioning in either social interaction, language as used in social communication, or symbolic or imaginative play. The disturbance must not be better accounted for by Rett syndrome or childhood disintegrative disorder.[1]
The medical model has been the most popular stance on autism ever since the condition was identified by Leo Kanner and Hans Asperger in 1943. Researchers at the time believed that autism was similar to schizophrenia but with the patients being more self-involved.
In 1965, the National Society for Autistic Children, later renamed the Autism Society of America, was founded by Bernard Rimland and Ruth C. Sullivan, along with a small group of other parents.[2] The Autism Society does not advocate explicitly to cure autism.
In 1995, the Autism Research Institute (ARI) began hosting its annual Defeat Autism Now! (DAN!) conference to discuss the latest developments in research. Beginning with the 2011 conference, ARI renamed it the ARI conference and suspended the list of DAN! doctors.[3]
In 2005, Autism Speaks was founded by Bob Wright and Suzanne Wright, a year after their grandson Christian was diagnosed as autistic.[4] Autism Speaks has since become the most recognized autism-related organization worldwide. Other celebrity endorsements of the medical model have included Ed Asner, Toni Braxton, Jim Carrey, Byron Dafoe, Sarah Gardner, Robert F. Kennedy, Jr., Olaf Kölzig, Scott Mellanby, Zack Peter, AJ Rafael, and Mike Rio.
In 2008, the first World Autism Awareness Day was celebrated after a United Nations General Assembly resolution recognizing the day passed in December 2007.[5][6][7][8]
The pro-cure perspective is a view of autism as a disorder characterized by various impairments, mostly in communication and social interaction. Although positive traits such as savant syndrome may be recognized, they are not seen as outweighing the negatives. Pro-cure organizations generally favor the medical model of disability with regards to autism. They believe that the atypical behaviors of autistic individuals are a detriment to those individuals' success, both socially and professional, and should therefore be reduced or eliminated through therapy. Autistic people's life experiences are viewed as sub-standard and a burden to their caretakers.
Autism Speaks co-founder Suzanne Wright published a "Call for Action" at the time of the organization's first national policy summit in Washington, D.C., explaining the urgency of what she called the autism crisis.[9] In this essay, she equates children being autistic to being "missing" and "gravely ill", and details the exhaustive experiences of their parents:
“ | Each day across this country, those three million moms, dads and other care-takers I mentioned wake to the sounds of their son or daughter bounding through the house. That is - if they aren’t already awake. Truth be told, many of them barely sleep—or when they do – they somehow sleep with one ear towards their child’s room—always waiting. Wondering what they will get into next. Will they try to escape? Hurt themselves? Strip off their clothes? Climb the furniture? Raid the refrigerator? Sometimes – the silence is worse.
These families are not living. They are existing. Breathing – yes. Eating – yes. Sleeping- maybe. Working- most definitely - 24/7. This is autism. |
” |
Awareness campaigns by various organizations draw attention to the prevalence of autism, estimated by the year 2012 as 1 in 68 individuals (1 in 42 males, 1 in 189 females) by the United States Centers for Disease Control and Prevention (CDC).[10] This figure has risen from the estimated 1 in 150 in the year 2000. The prevalence statistic is used to describe the scope and size of the problem, and the increase over time is used to frame the issue as urgent. Some organizations and individuals even call it the autism epidemic.[11] Awareness campaigns educate people not only about the prevalence of autism but also how it is characterized. Almost every autism-related organization has a flyer or a section of their website describing what autism is, in a way that supports the organization's point of view. Descriptions used by the medical model are generally based on the facts and language used in medical journals.
Autism is classified as a disorder in the Diagnostic and Statistical Manual of Mental Disorders and International Statistical Classification of Diseases and Related Health Problems. Attempts have been made to place a figure on the financial cost of autism, addressed to both scholarly[12] and popular audiences.[13]
Activists like Jim Sinclair and Donna Williams and organizations such as Aspies For Freedom and the Autistic Self Advocacy Network, contend that autism is not a disorder, but a normal variant within the neurological diversity of the human genome. Struggles faced by autistic people are attributed to discrimination rather than deficiencies. Proponents of the anti-cure perspective believe that quirks and uniqueness of autistic individuals should be accepted and that efforts to eliminate autism should not be compared, for example, to curing cancer but instead to the antiquated notion of curing left-handedness.[14][15] Therapies that attempt to restrict autistic behaviors, particularly applied behavior analysis (ABA), have been challenged on ethical grounds. Autism rights activists argue that ABA therapy and restriction of stimming "and other autistic coping mechanisms" are mentally harmful, that aversion therapy and the use of restraints are physically harmful, and that alternative treatments like chelation are dangerous.[16] Michelle Dawson, a Canadian autism self-advocate, testified in court against government funding of ABA therapy.[15] An autistic person named Jane Meyerding criticized therapy which attempts to remove autistic behaviors because she says that the behaviors that the therapy tries to remove are attempts to communicate.[14]